MARC状态：审校 文献类型：西文图书 浏览次数：25
- 题名/责任者:
- In a different key : the story of autism / John Donvan, Caren Zucker
- 版本说明:
- First edition
- 出版发行项:
- New York : Crown Publishers, [2016]
- ISBN:
- 9780307985705
- ISBN:
- 0307985709
- ISBN:
- 9780307985675
- ISBN:
- 0307985679
- 载体形态项:
- xiv, 670 pages ; 25 cm
- 个人责任者:
- Donvan, John (John Joseph), 1955- author
- 附加个人名称:
- Zucker, Caren (Caren Brenda), 1961- author
- 论题主题:
- Autism spectrum disorders-History
- 论题主题:
- People with disabilities
- 论题主题:
- Autistic Disorder-history
- 论题主题:
- Mentally Disabled Persons-history
- 论题主题:
- Patient Rights
- 中图法分类号:
- R749.94
- 书目附注:
- Includes bibliographical references (pages 563-642) and index
- 摘要附注:
- "Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability"--
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